Wednesday 24 August 2016

Six month milestone & all clear!!!

15/8/16 saw Lauren through the 6 month mark since the CAR T-Cell therapy and latest checks show MRD negative!!! A welcome ongoing result.

This month also gave us the opportunity to catch up and thank Andrew Southcott - former MP and Member for Boothby. My facebook post below from 5/8/16:

A chance to finally thank Andrew Southcott in person for his help with Lauren and her treatment over the last 12 months. Last year he was an MP in Federal Government (and a good one at that!!), now he's back into medicine as a practicing Doctor/Medico.
He finally met Lauren for the first time in person today and saw the outcome of his handy work!!! A real gentleman!!! He did much more than make a crane in parliament - can't thank him enough!! (And Marion for your help AGAIN in making sure meeting happened :)

Monday 4 April 2016

Day +49. Today's Adelaide Advertiser, page 8

Look what appeared in today's Advertiser. One of the journalist's been following this blog since the 'Cranes for Lauren' articles. Just a shame they didn't have a current photo - as this was an old 'steroid' photo - steroids now long gone as has the leukaemia!!! ....





...or click below to see today's article:

http://www.adelaidenow.com.au/messenger/east-hills/lauren-krelshem-wins-cancer-fight-with-car-tcell-therapy/news-story/4b346410046adbc7cc924f274a14e1c0

Sunday 27 March 2016

Day +41. From Adelaide

Our last day in Melbourne was spent in RCH receiving bloods which took all day. Wasn't the way we planned to spend our last day there, but Lauren needed a few blood products. She was planning on having her nails manicured once more before leaving Melbourne at her favourite Salon, Salon Royale located in the Royal Children's Hospital (RCH). Unfortunately that and her hair wash had to be cancelled, but Fiona and the girls came and visited her in the day oncology ward for a pressie Lauren bought for them for their great support in washing her hair a few times, which they didn't charge for.
She'll get to revisit them in April for that manicure!!!
Other than that, we had a last minute catch up with more Melbourne family and someone Kate (Lauren's sister) wanted to meet in 3 year old Joseph!
























On leaving we gratefully acknowledge the support of Ronald McDonald House Parkville
where nothing was too much trouble. If it wasn't for this accommodation across the road from the hospital, our stay in Melbourne wouldn't have been so simple. Over the 2 months we met so many inspirational families challenged by various illnesses with a sick child. Unfortunately, one of those families lost their son this week in 15 year old Jordy. Such tragic news, our hearts go out to them. We all know it, but it just shouldn't happen - unfortunately it does. So next time you want to whinge about a scratch on your car or the weather etc, think about a family who lose their child far too early. It's happening too often, be thankful you may not be exposed to it.

On arriving back in Adelaide on Tuesday and to a new house Lauren hadn't even seen because she was in hospital when we moved, a few of her friends did up her room to welcome her home!! Thanks Bermata, Cassie & Amelia. Great job and a nice surprise for her.
.....and thanks to 20,000 cranes and their wishes and the many people behind those cranes - Thank you!!!

Wednesday 23 March 2016

Lauren's facebook post on Monday - last night in Melbourne! (Day +35 Mon)

Last Melb update and probably my last (and biggest) update for a good while:

I figured because this is my last night in Melbourne after receiving the Car T Cell treatment and getting the good news that it has worked so well that I should probably do an update.

Let me start by saying the people over here, from the doctors, nurses, physio, anaesthetists, social workers, psychologists, dietitians, surgeons to even the girls at the hospital salon and the staff and volunteers at Ronnie Mac House and the organisation Challenge have just been amazing and have made the last two months just so much more easier for me and my family. Your professionalism, support, care, empathy and friendship have been state of the art.

And to my medical team, whose names I won't put up here just incase, you truly are life savers. I've never experienced a team that works so well and quickly together and who have cared about all of my problems, regardless of whether they were cancer related, communicating with the right people to get those problems fixed asap. Your seriousness, passion, warm smiles, turning medical jumble into English plus your Scottish and French accents 😉 will be missed! I've never felt so confident in a medical team like yours and you did what it took to make me as comfortable as possible and made sure I had every chance possible that this treatment would work and continue to work. Thank you.

I hope when I come up again for follow-up appointments and what not I atleast bump into some of you!!
Even though I'm anxious to leave I'm so excited to be coming home! And even more excited now that I am officially cancer free!!

I still have a weak immune system and I'm still on crutches learning how to walk and gaining those walking muscles I lost so I won't be able to do some things for a while. I also will need regular platelet (the clotting cell in your blood) and haemoglobin (the cell that gives you energy by taking oxygen around your body) transfusions in the coming month or two as my body, especially my bone marrow, (if any of you have forgotten that's the pudgy bit in the middle of your hip bone where all your cells are created) still recovers and works out a way to live harmoniously with my new T cells. So don't get upset if I can't catch up with all of you straight away!! Still got to be really careful so I don't get an infection and jeopardise the treatment.

So for the Royal Adelaide Hospital team,
Watch out - I'm coming back, healthier and stronger than ever!! (Whether that's a good or bad thing I'll let you decide)

But even though I still have a while to go until I'm like all of you healthy people again - I have had the best outcome possible and I am so grateful to whatever it was in this world that put the pieces and timing in place for me to be able to receive this treatment and I have no doubt in my mind that it was because of all of the prayers, positive vibes and I guess the 20,000 cranes that has helped make this happen. I certainly would have gone insane without your support, especially the support of my family. Dad, Mum, Gram, Kate and Nathan - there is noooo way in this world I could have gotten through this so well without you. You guys are really the reason why I'm here, you've had to put up with all the shit that having to care for a cancer patient in and out of hospital brings and I will never be able to put into words how much more easier you've made this Journey and especially this Melb trip for me. I love you.

Oops I'm getting pushed off the stage cause the music started about a minute ago - sorry buuuuuut not sorry.
So, to finish off, with the biggest smile on my face, remembering all the friends you've taken from me, for all the innocent souls you will take in the future and for all the lucky survivors now and to come who will have to live with your horrible memories, thinking about the day where everyone will have the joy to say they have won, I say ‪#‎FUCKCANCER‬!

Thursday 17 March 2016

Day +31 (Thurs) - Negative MRD......Cancer free!!!

The pictures say it all....
Negative MRD - first time we've been in this space since Lauren's relapse in Feb 2015!!! Doctor's and team are all ecstatic....not to mention us and especially Lauren!! It's been a long journey from Feb 2015 to now, but all been worthwhile. From a recommendation for palliative care to this outcome is simply AWESOME!!!!!

Wednesday 16 March 2016

Day +30 (Wed) PET Scan

All tests this week. PET Scan today at Peter MacCallum Cancer Centre here in Victoria. If you think the Royal Children's Hospital Melbourne is a good, modern facility - wait until you see the new Peter MacCallum Cancer Centre opening here in June this year. Victoria is doing such a great job investing is so much infrastructure for its citizens. You have to feel short changed living in SA in comparison.

Tuesday 15 March 2016

Day +29 (Tues) Bone Marrow biopsy

Bone marrow biopsy today - first since the T-Cell infusion on 15 Feb 2016, which should give a clear indication of how the T-Cell therapy is progressing. The lumps disappearing in the neck have been a good indicator of progress too - only one small one left at this stage.

Other than that, she's had a few blood & platelet transfusions today and last week, but this doesn't seem to be causing the team any concern at this stage of the treatment.

So all quiet except a team of bike riders raising funds for Ronald McDonald House rode into town last week by riding through rural Victoria (500+ Kms). Seeing as we've been staying here (Ronald McDonald House) since January and after speaking to some riders, I've decided to join next year's ride - dumb I know!!! Actually it was meeting the truck driver and how many bikes he can carry if you have to stop any day - that was the clincher for me!!!

Sunday 6 March 2016

Day +20 (Sun). Nothing new to update

Nothing much happening on the medical side for Lauren except for blood checks (1 transfusion, platelets) and physio on her leg a couple of times a week. Bone marrow biopsy next week should give a better picture of how the treatment is working.

So Lauren has been busy having her first manicure (with Kate's first pedicure)
and a gentle massage from www.challenge.org.au - a switched on local charity providing support to cancer patients and their families. For a state based charity they punch above their weight in support services.